The Adventures of Kidney Boy

A Journal About Living With End Stage Renal Disease. Dialysis. Transplants. Love. Family. Friends. The Unsung Donor. This is my life, from the end of a needle to the bottom of a pill bottle.

Thursday, June 16, 2011

What will life bring?


These past few months have been kind of crazy.  It's amazing how life can seem to drag on and stand still for so long, then all of a sudden a few things happen and suddenly the world tumbles to life again.

This whole upcoming benefit for me is crazy - crazy good.  I'm so humbled, really, by the outpouring of support.  People have come out of the woodwork to lend their good wishes to me, and it's incredible... sometimes it can seem like this world is a horrible place.  Bad things happen to good people.... good things happen for bad people.... life marches on mercilously... we worry about so many things... but it amazes me how people really can be loving, caring and supportive in massive amounts.  Yeah, there may be some crappy things in this world - but there is good.  There are good people, and lucky for me - I seem to have befriended many of them.

I really can't find the words at times... I get all quiet and shy about it.  Then I worry that people would think I was stuck up about it all or taking it for granted.  But that's the furthest from the truth.... I'm so overwhelmed.  It makes me want to go out and do good things for people... it starts, however, by being good to the people around you.  You can't save the world if you can't help those closest to you.  Or just people who are in your life everyday.  I try to remember to treat those around me and in my life well.  I'm not always perfect, but I try to remember that you catch more flies with honey than vinegar.

So, yeah, the benefit.... amazing.  And, I hate to admit that I need help, but it'll help so much.  Bills pile up... getting back on my feet after getting a transplant is going to be an arduous task.  But I'm really aching to go back to work - to do anything.  Just get out there, do something and earn my keep.  You get really plowed under financially when you get diabilitatingly sick like having kidney failure.  I don't want to be extravagant, but I'd like to be able to do the American Dream thing - new car, house, etc... I'll get there.

Also, spending another week in the hospital just reminds me of how fragile I can be.  I'm really tough for some reason, but it can be just a little thing like an infection that puts me in a bed with an IV for a week.  I feel like I'm a pro at being a patient.

And getting the call?  I'm waiting for the next one with such hope.... Jordan's waiting with so much hope.  That girl gives me so much..... I couldn't do it without her.  It's so funny.  When we started dating, I was so scared of her leaving because she couldn't handle my illness.... and I understood that.  It's a lot to put on someone.  But she wore than mantle.... maybe better than I have.  She's never stopped believing in me and loving me.  Even when I'm at my most miserable, mean, spitting, yowling, needing dialysis bad, bleeding, puking, dizzy..... she's stood there, wiped me off - reminded me of how strong we are and she pushes me to keep the faith.  I believe in us more than I've believed in anything else in my life.  The girl is my best friend.  And I love her.  And that's the most incredible thing I've ever known.

So, we wait.... what kind of future will the transplant bring me?  Will I be the man I've always wanted to be?  Active?  Responsible?  Capable.... Happy?  Will it work well this time?  I don't even remember what it feels like to feel good..... I wonder if I'll bound around like a Tigger when I get this kidney.  Will I bounce off the walls?  Can you stop me?  Can I stop myself??  I don' know.... but I'm so damn excited to find out.  I need the change.

And, after the transplant, I'll still require a lot of immunosuppresant drugs to fight rejection.  I'll always be kidney boy for the rest of my life.... but, dammit, it's my life and I'm going to live it and live it well.



  1. Bravo Sir, well said. The two of you are a great team and I am honored to know you. You have survived so much and yet still have maintained the same demeanor. Through the struggle you have held your identity and your unique personality while remaining focused on the big picture. Anyone who has known you knows how true your heart is and how you really do appreciate all that is around you. You have been graced with an exceptional partner and the two of you will share a long, happy, wonderful life together. Steve, I am proud to call you a friend, and I wouldn't be the same person had I never met you. You touch more people then I think you realize and that is evidenced by the response to Steve-Stock, anyone who meets you cannot forget you.
    Stay strong and keep your eye on the horizon, everything else will work itself out.

  2. We're so glad you have Jordan, what a blessing! I'm sure you are just as important to her, don't forget that. Married love is not just something we feel; it is a decision to be devoted to someone no matter what. You two are living that reality well.

    Hope to see you soon. :)

  3. It sounds like the future is full of possibilities!
    Best wishes!

  4. Steve have your wife email me... I have a fundraiser for her.... I think it will help you two out a lot.